Link
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Rating
1 User Friendly
2 Sort of Useful
3 Not Friendly
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Site Summary
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Penn
Center for Bioethics
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1
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Has
a very large bioethics program and many resources. Be sure to
look at the newsletter! |
DNA for Dinner?
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1
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This site challenges you to answer the question:
should genetically engineered food crops be specially labelled for
consumers and why?
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The Seattle Times Cancer Center Story
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1
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This site focuses on the particular controversies
surrounding 2 human research studies at Fred Hutchinson Cancer Center
in Seattle, WA. News stories and background info on two cancer studies
(concerning biomedical ethics) are examined.
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National Bioethics Advisory Commission
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1
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NBAC is a governmental organization devoted
to bioethics; they provide reports and recommendations on bioethical
issues. Go to /links.html for other bioethics sites.
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National Reference Center for Bioethics Literature
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1
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This site features great resources and also
provides quality links. Another interesting featureL you can fill
out a search request to receive information on a particularr research
topic.
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Bioethics Resources on the Web, from the National Institute of Health
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1
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This is a great site for finding resources on
bioethics, in a variety of different areas. In addition to having
a search feature, it also provides useful information about the
many organizations affiliated with bioethics.
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Human Genome Project Information, ELSI section
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1
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Although the site is limited to the Human Genome
Project, it offers a variety of ethical, legal, and social issues:
gene testing, gene therapy, privacy, patenting, forensics, etc.
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Kennedy Institute of Ethics at Georgetown University
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1-2
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Look at the sidebar for topics: Bioethics links,
Feminist Approaches to Bioethics (good links from this site), Bioethics
Library, Publications, etc. This is a good source for publications
and links to documents and other relevant sites.
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Bioethics.Net, The American Journal of Bioethics Online
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1-2
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This site has up-to-date bioethics news, special
features (like an examination of bioethical issues that arise in
each episode of NBC's "ER"), and journal articles. The search feature
is OK; you can enter your email (very simply to get sent updates
on bioethics in the news. There are also links to other journals,
some with full-text articles available to download.
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The Bioethics Institute at Johns Hopkins University
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1-2
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This site includes sections on Bioethics and
today's news, more in-depth series on such topics as medical privacy
(Complete with federal and state legislation and proposed bills)
and international research ethics issues. There are also useful
research papers and articles, as well as good links.
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National Institutes of Health, U.S.
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1-2
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Although this site is not very specific, it
is a good resources for locating materials on ethical and legal
issues affecting health in the United States.
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The Centers for Disease Control, Office of Genetics
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1-2
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This site features lots of resources for genetics
and diesease information. There is also a glossary of genetic terms,
Human Genome Project info, a medical literature search feature,
and a look at public health perspectives.
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NOVA online special through PBS: "Cracking the Code of Life"
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1-2
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The site features the PBS TV special, a series
of segments on different aspects of the Human Genome Project.
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Science Magazine Online
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1-2
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The site has a good search function and is replete
with Science articles on a variety of topics.
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National Human Genome Research Institute ELSI
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2
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Explains the meaning of ELSI (Ethical, Legal
and Social Issues) and gives information about the ELSI program
at the NHGRI. Some info is included on policy, public affairs and
legislation.
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American Society for Bioethics and Humanities
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2
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For relevant info for this class, check under
Law, Science and Technology, and Ethics and Philosophy. Go to /links/
for other sites.
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Stanford University Center for Biomedical Ethics, an extension of
Stanford's School of Medicine
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2
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The SCBE is an interdisciplinary organization
"addressing the complex ethical, social and legal issues in biomedicine."
Links describe interesting research projects that are underway,
although the publications link was under construction as of June
25, There are good links to resources, but the search function is
not particularly useful.
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Center for Applied Ethics, University of British Columbia
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2
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At this site, the resources are very good (articles,
links to other websites, documetns, etc.), especially /resources/biomed.
It features a variety of ethics areas from which you can select.
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Center for Bioethics, University of Minnesota
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2
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"Resource Center" has good links, sorted by
topic (i.e. Genetics, Assisted Suicide, etc.). There are also some
helpful articles under "publications." You can also get the Center's
quarterly publication "Bioethics Examiner," in PDF format.
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The American Society of Law, Medicine, and Ethics
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2
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Here, you will find publications via links to
journals and articles
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International Bioethics Committee of UNESCO
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2
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The site includes the Committee's declarations,
reports, and other documents in PDF form.
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National Center for Biotechnology Information
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2
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This site presents information on genetics and
advances in biotechnology
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Online Ethics Center for Engineering and Science at Case Western
University
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2
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While the engineering material is not specific
to this course, there is good material on research ethics, and the
site is well-organized.
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Karolinska Institute of Sweden
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2
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Provides a good page of links.
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Ethics in Medicine, University of Washington School of Medicine
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2
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This site, designed for medical students at
the U-W, has a good section on Bioethics Topics; it also features
mini "mock cases" with discussions on how to act in a given situation.
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University of Pittsburgh, Center for Bioethics and Health
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2
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There is a good links section at this site.
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The Hastings Center
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2
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The Hastings Center is "an independent, non-partisan,
interdisciplinary research institute that addresses fundamental
ethical issues in the areas of health, medicine, and the environment
as they affect individuals, communities, and societies."
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GeneLetter
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2-3
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GeneLetter is an electronic newsletter that
informs consumers and professionals about advances in genetics and
to encourage debate about emerging medical, ethical, legal and policy
dilemmas.
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The Danish Council of Ethics
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3
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The Danish Council provides advice to the Danish
Parliament regarding bioethical issues. In that respect, the site
provides an international perspective, but is not student-friendly.
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Institute of Medicine, Law, and Bioethics, UK, Universities of Liverpool
and Manchester.
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3
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On this site, the "useful links" link is good,
providing a connection to many prominent British science, law, and
medicine journals, but the majority of the site is not very useful.
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Eubios Ethics Institute, Japan
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3
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This site includes bioethics news updates and
a listing of documents concerning international codes, declaration,
and ethics guidelines -- however, it only lists the bibliographical
information for the texts; there are no actual links to the texts.
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